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WELCOME TO THE BSR-PsA STUDY

British Society for Rheumatology Psoriatic Arthritis Register (BSR-PsA)

What is BSR-PsA?

Psoriatic Arthritis (PsA) has a diverse set of symptoms, which can affect people in different ways. There are a number of treatments available but how effective these drugs are at treating the disease can vary, with individuals responding differently to the same drug. The underlying biological reason for this variation in response to the same drug is poorly understood.

The BSR-PsA is a long-term study, which has been set up to investigate the impact of psoriatic arthritis (PsA) on the quality of life of affected individuals over a number of years and to monitor the safety of treatments available for PsA.

We also want to find out more about how treatments affect the lives of PsA patients in areas like work, driving, general quality of life and why some people respond well to certain drugs and others do not.
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Can I take part?

Patients are recruited to the study through their local rheumatology clinic. You may be eligible for the study if you are a patient at one of the recruited centres and you:

  • Have been diagnosed with Psoriatic Arthritis, are aged 16 years old or over, and are treated in adult rheumatology services.
  • Are starting any biologic or targeted therapy approved for the treatment of PsA in the United Kingdom, having never previously received that treatment. Or,
  • Have never received a biologic or targeted therapy.

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If you are interested in taking part, or have any questions?

CONTACT US

Where can I take part?

NHS Grampian, Aberdeen

Key people:

Investigator:

  • Dr Rosemary Hollick

Address:

Ashgrove House
Rheumatology Department
Aberdeen Royal Infirmary
Aberdeen
AB25 2ZA
NHS Greater Glasgow & Clyde

Key people:

Investigator:

  • Dr Stefan Siebert

Address:

Clinical Research Facility
Glasgow Royal Infirmary
New Lister Building
10 Alexandra Parade, Glasgow
G31 2ER
NHS Lanarkshire

Key people:

Investigator:

  • Dr James Dale

Address:

University Hospital Wishaw
50 Netherton Street
Wishaw
ML2 0DP
Nevill Hall Hospital, Monmouth

Key people:

Investigator:

  • Mrs Anna Roynon-Reed

Address:

Research and Development Delivery Team
Aneurin Bevan University Health Board
Nevill Hall Hospital, LS22 Floor One
Brecon Road, Monmouth
NP7 7EG
Wrexham Maelor Hospital - coming soon

Key people:

Investigator:

  • Dr Zoe McLaren

Address:

Wrexham Maelor Hospital
Croesnewydd Rd
Wrexham
LL13 7TD
Ysbyty Gwynedd/Llandudno - coming soon

Key people:

Investigator:

  • Dr Yamseen Ahmad

Address:

Ysbyty Gwynedd
Midlands Partnership NHS Foundation Trust

Key people:

Investigator:

  • Dr Jonathan Packham

Address:

Midlands Partnership NHS Foundation Trust, Barker
Haywood Hospital
High Lane
Burslem
ST6 7AG
King's Mill Hospital Sherwood Forest Hospitals NHS Foundation Trust

Key people:

Investigator:

  • Prof David A Walsh

Address:

Clinic 6 Kings Treatment Centre
Kings Mill Hospital Sherwood Forest Hospitals NHS
Mansfield Road
Sutton-in-Ashfield, Notts
NG17 4JL
The Queen Elizabeth Hospital King's Lynn NHS Foundation Trust

Key people:

Investigator:

  • Dr Imran Riaz

Address:

R&D - Tilney (GFL Offices)
Queen Elizabeth Hospital King's Lynn
Gayton Road
Kings Lynn
PE30 4ET
Nottingham University Hospitals NHS Trust

Key people:

Investigator:

  • Dr Ira Pande

Address:

Rheumatology, A46, South Block
Queen’s Medical Centre
Nottingham University Hospitals NHS Trust
Derby Road, Nottingham
NG7 2UH
Guy's and St Thomas' NHS Foundation Trust

Key people:

Investigator:

  • Prof Bruce Kirkham

Address:

Rheumatology Research Office
1st Floor Counting House
Great Maze Pond
London
SE1 9RT
Hull Royal Infirmary

Key people:

Investigator:

  • Dr Yusuf Patel

Address:

Hull Royal Infirmary
4th Floor Alderson House
Anlaby Road
Hull
HU3 2JZ
King’s College Hospital NHS Foundation Trust

Key people:

Investigator:

  • Dr James Galloway

Address:

Department of Rheumatology
Portacabin B
King's College Hospital NHS Foundation Trust
Denmark Hill
SE5 9RS
Ashford & St Peter’s Hospitals NHS Foundation Trust

Key people:

Investigator:

  • Dr Edward Sames

Address:

Guildford Road
Chertsey
SURREY
KT16 0PZ
Harrogate District NHS Foundation Trust

Key people:

Investigator:

  • Dr Mike Green

Address:

Harrogate District Hospital
Rheumatology/Gastro Research
Farndale Suite, Room 8 2317
Harrogate, North Yorkshire
HG2 7SX
Bradford Teaching Hospitals NHS Foundation Trust

Key people:

Investigator:

  • Prof Philip Helliwell

Address:

Bradford Teaching Hospitals NHS Foundation Trust
Department of Rheumatology, D3
St Lukes Hospital, Little Horton Lane
Bradford
BD5 0NA
Sandwell & West Birmingham Hospitals NHS Trust

Key people:

Investigator:

  • Dr Srinivasa Elamanchi

Address:

Sandwell & West Birmingham Hospitals NHS Trust
R& D Office, 2nd Floor,
D46, Sheldon Block, City Hospital
Dudley Road, Birmingham
B18 7QH
Newcastle Upon Tyne Hospitals NHS Trust

Key people:

Investigator:

  • Dr Lesley Kay

Address:

Rheumatology Research, Level 1, Room 49,
The Freeman Hospital
High Heaton
Newcastle Upon Tyne
NE7 7DN
Yeovil District Hospital NHS Foundation Trust

Key people:

Investigator:

  • Dr Sally Knights

Address:

Yeovil District Hospital NHS Foundation Trust
Higher Kingston
Yeovil
Somerset
BA21 4AT
Royal United Hospitals Bath

Key people:

Investigator:

  • Dr William Tillett

Address:

Rheumatology Research Office
2nd Floor, Royal National Hospital for Rheumatic D
Upper Borough Walls
Bath
BA1 1RL
Homerton University Hospital NHS Foundation Trust

Key people:

Investigator:

  • Dr Claire Gorman

Address:

R&D Department (Yellow Roof Offices)
Homerton University Hospital
Homerton Row
London
E9 6SR
Milton Keynes University Hospital

Key people:

Investigator:

  • Prof Simon Bowman

Address:

Milton Keynes University Hospital
Standing Way
Eaglestone
MK6 5LD
Poole Hospital NHS Foundation Trust

Key people:

Investigator:

  • Dr Muhammad Khurshid

Address:

Poole Hospital NHS Foundation Trust
Studland Centre
Longfleet Road
Poole
BH15 2JB
Minerva Centre Lancashire Care NHS Foundation Trust

Key people:

Investigator:

  • Dr Sarah Horton

Address:

Research and Development Department
Lancashire Care NHS Foundation Trust
the Lantern Centre, Vicarage Lane
Fulwood, Preston
PR2 8DW
York Hospitals NHS Foundation Trust

Key people:

Investigator:

  • Dr Michael Green

Address:

Research & Development Unit
Learning & Research Centre
York Hospital, Wigginton Road
York
YO31 8HE
St Helens and Knowsley Teaching Hospitals NHS Trust

Key people:

Investigator:

  • Dr Rikki Abernethy

Address:

St Helens and Knowsley Teaching Hospitals NHS Trus
Rheumatology Department
St Helens Hospital
St Helens
WA9 3DA
Aintree University Hospital

Key people:

Investigator:

  • Dr Nicola Goodson

Address:

Rheumatology Research Team
3rd Floor Clinical Sciences Centre
Longmoor Lane
Liverpool
L9 7AL
Cambridge University Hospitals NHS Foundation Trust

Key people:

Investigator:

  • Dr Deepak Jadon

Address:

Rheumatology Research Unit
Level E6, Addenbrooke’s Hospital
Cambridge University Hospitals NHS Foundation Trus
Cambridge
CB2 0QQ
Leeds Institute of Rheumatic and Musculoskeletal Medicine

Key people:

Investigator:

  • Prof Helena Marzo-Ortega

Address:

Leeds Institute Rheumatic & Musculoskeletal Medici
2nd Floor, Chapel Allerton Hospital
Chapeltown Road
Leeds
LS7 4SA
Scarborough Hospital

Key people:

Investigator:

  • Dr Zaid Al-Saffar

Address:

Clinical Research
Scarborough Hospital
Woodlands Drive
Scarborough
YO12 6QL
Royal Devon and Exeter Hospital

Key people:

Investigator:

  • Dr Richard Haigh

Address:

Room s2.01
Level 2, RILD
Royal Devon & Exeter NHS Foundation Trust
Barrack Road, Exeter
EX2 5DW
Royal Cornwall Hospitals NHS Trust

Key people:

Investigator:

  • Dr David Hutchinson

Address:

B15, The Knowledge Spa
Truro
Cornwall
TR1 3HD
Queens Hospital, University Hospitals of Derby and Burton

Key people:

Investigator:

  • Dr Ramasharan Laxminarayan

Address:

University Hospitals of Derby and Burton
Queens Hospital site, Belvedere road
Burton on Trent
Staffordshire
DE13 0RB
Kingston Hospital NHS Foundation Trust

Key people:

Investigator:

  • Ms Kate Hunt

Address:

Research & Innovation Department
Stenhouse Library, 5th Floor, Education Centre
Galsworthy Road
Kingston upon Thames
KT2 7QB
Great Western Hospitals NHS Foundation Trust

Key people:

Investigator:

  • Dr Sara Carty

Address:

Research and Innovation, COMMONHEAD OFFICES
Great Western Hospitals NHS Foundation Trust
Marlborough Road
Swindon
SN3 6BB
Torbay & South Devon NHS Foundation Trust - coming soon

Key people:

Investigator:

  • Dr Kirsten Mackay

Address:

Rheumatology Department
1-20 Kitson Hall
Torbay Hospital
Torbay
TQ2 7AA
Barnsley Hospital NHS Foundation Trust - coming soon

Key people:

Investigator:

  • Dr Lorraine Croot

Address:

Rheumatology Department
Barnsley Hospital NHS Foundation Trust
Gawber Road
Barnsley
South Yorkshire
New Cross Hospital - The Royal Wolverhampton Hospitals NHS Trust - coming soon

Key people:

Investigator:

  • Dr Nick Barkham

Address:

The Royal Wolverhampton Hospitals NHS Trust
New Cross Hospital
McHale Centre
Wolverhampton
WV10 0QP
Cannock Chase Hospital - The Royal Wolverhampton NHS Trust - coming soon

Key people:

Investigator:

  • Dr Diarmuid Mulherin

Address:

The Royal Wolverhampton NHS Trust
Rheumatology Unit, Clinical Trials Office
Cannock Chase Hospital
Brunswick Road, Cannock
WS115XY
Sunderland Royal Hospital - coming soon

Key people:

Investigator:

  • Dr Claire Bracewell

Address:

Research & Innovation, Level 1 Education Centre
Sunderland Royal Hospital
Kayll Road
Sunderland
SR4 7TP
University Hospitals Coventry & Warwickshire

Key people:

Investigator:

  • Dr Nicola Gullick

Address:

Research & Development, PRI Suite ADB30049, 3rd Fl
University Hospitals Coventry & Warwickshire
Clifford Bridge Road, Walsgrave
Coventry
CV2 2DX
Wirral University Teaching Hospital NHS Foundation Trust

Key people:

Investigator:

  • Dr Emmanuel George

Address:

Arrowe Park Hospital
Arrowe Park Road
Upton
Wirral
CH49 5PE
Royal Berkshire NHS Foundation Trust - coming soon

Key people:

Investigator:

  • Dr Antoni Chan

Address:

Research & Development
Level 2, North Block
Royal Berkshire Hospital
Reading
RG1 5AN

Study news

Recruitment

389/1500

Trial sites

Latest addition to sites:

Wirral University Teaching Hospital NHS Foundation Trust
University Hospitals Coventry & Warwickshire
Great Western Hospitals NHS Foundation Trust
Kingston Hospital NHS Foundation Trust

Key facts about the study and documents

What is this study about?

This study will investigate the long-term impact of psoriatic arthritis on the quality of life of affected individuals, how different types of PsA influence patients in areas like work, driving and function and monitor the safety of novel treatments for PsA. The study will also create a psoriatic arthritis (PsA) biobank that will store a collection of human tissue obtained from people with PsA that will be analysed to determine the underlying reasons why individuals can respond differently to the same drug. This research will hopefully lead to PsA being treated more effectively in individuals in the future, as it may be possible to predict which treatment option will be more successful at treating specific symptoms of PsA.


What is my involvement in this study?

If you are eligible and decide to take part in the study, you will be asked to sign a consent form at your routine clinic appointment. During this appointment, you will be asked to complete a questionnaire about your disease and a member of the local research team will take measurements. We will then ask you to complete an annual follow up questionnaire.

We are particularly interested in certain drugs `biologics’ and other targeted therapies. If you are starting one of these drugs, your consultant will discuss this with you. We would also like you to complete a questionnaire at 3 months and 6 months after starting one of these treatments.

You will also need to keep a record of any time you may spend in hospital, any new medications or hospital referrals or if you or your partner becomes pregnant. You will be given a study diary to record these events.

If you are recruited to the study you may wish to take part in the bioabank, depending on your recruitment centre. If you decide to take part in the bioabank, you will be asked to donate up to 50ml of blood and give a urine sample when starting or changing your treatment, and after 3 months of starting or changing your treatment.

Where can I get more information?

If you would like more information about the BSRBR-PsA, please contact the coordinating centre at the University of Aberdeen on 01224 438052 or via bsr-psa@abdn.ac.uk.

You can find out more information about BSR-PsA here:

Download documents:

Patient Information Leaflet for Main Study (version 04)

Key contacts

Click on cards to find out more

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Organisation

The British Society for Rheumatology has commissioned researchers at the University of Aberdeen, Epidemiology Group, to co-ordinate the BSR-PsA. https://www.abdn.ac.uk/iahs/research/epidemiology/overview-106.php

GDPR STATEMENT

Please read this, alongside the BSR-PsA Patient Information Sheet.

1. What is GDPR
The General Data Protection Regulation (GDPR) (EU) 2016/679 is a regulation in EU law on data protection and privacy. Its main aim is to give control to people over their personal data.

2. How will my data be managed in the BSR-PsA?
The University of Aberdeen is the sponsor for the BSR-PsA, a study based in the United Kingdom. We will be using information from you, in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. The University of Aberdeen will keep identifiable information about you for 5 years after the study has finished.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible. You can find out more about how we use your information https://www.abdn.ac.uk/privacy, or by contacting the University's Data Protection Officer on dpa@abdn.ac.uk. Your healthcare site will use your name, NHS number, date of birth and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from the University of Aberdeen and regulatory organisations may look at your medical and research records to check the accuracy of the research study. Your healthcare site will pass these details to the University of Aberdeen along with the information collected from you and your medical records. The only people in the University of Aberdeen who will have access to information that identifies you will be people who need to contact you for the research project or audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number or contact details. Your healthcare site will keep identifiable information about you from this study for 5 years after the study has finished