FUTURE is a research study looking at how useful a special bladder test called ‘Urodynamics’ is at improving the treatment results for women affected by refractory overactive bladder (OAB).
OAB affects 12-14% (12 in every 100 women) of the adult female population in the UK. Symptoms include increased frequency (going to pass urine more frequently); urgency (being unable to hold-on); urgency incontinence (Urinary Leakage being unable to hold-on); and waking up at night to pass urine.
Although rarely life-threatening, OAB can have a considerable negative impact on patients’ quality of life, restricting their social life and ability to work, and up-to social isolation in severe cases.
Recruitment to the study has now closed and longer-term follow-up is ongoing.
The women who took part in the FUTURE study and consented to being contacted about the longer-term follow-up study will be invited to take part. They will be asked to complete one additional questionnaire at approx. 5- years post-randomisation. Information on further treatments will also be collected from NHS central registers.
University of Aberdeen/NHS Grampian is the sponsor for this study based in the United Kingdom. For the longer-term follow-up study, the University of Aberdeen will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. The University of Aberdeen will keep identifiable information about you for up to 10 years after the study has finished.
Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
You can find out more about how we use your information here: https://www.abdn.ac.uk/about/privacy/research-participants-938.php or by contacting the Data Protection office at dpa@abdn.ac.uk